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The law dubbed the “Right To Try” was signed by President Trump today. It deals with giving those with terminal illnesses the option to use medications that have passed Phase 1 FDA trials, the reason being that by the time the medication in question has passed all the FDA requirements, the patient may have died waiting for it.
There is a movement that has been pushing this for a long time, and there are serious concerns about it as well. But for those who are dealing with the reality of a terminal illness, this law represents a chance to live, even knowing the risks.
The president signed it into law today at the White House.
Today I am proud to keep another promise to the American people as I sign the #RightToTry Legislation into law. pic.twitter.com/VD8CN5YfIo
— Donald J. Trump (@realDonaldTrump) May 30, 2018
With the #RightToTry Law I signed today, patients with life threatening illnesses will finally have access to experimental treatments that could improve or even cure their conditions. These are experimental treatments and products that have shown great promise… pic.twitter.com/FIUwhpUpoL
— Donald J. Trump (@realDonaldTrump) May 30, 2018
Moments ago, it was my great honor to sign #RightToTry into law! https://t.co/mtPiHsBc1H pic.twitter.com/hFtpyJlV4h
— Donald J. Trump (@realDonaldTrump) May 30, 2018
And this most adorable moment happened.
MUST WATCH: A young boy attempts several times to nab Pres. Trump's attention during signing of the "Right to Try Act"—and finally succeeds in getting a hug from the president – ABC pic.twitter.com/h56JXH1mWr
— Breaking911 (@Breaking911) May 30, 2018
That young man is Jordan McLinn.
Nine-year-old Jordan McLinn is battling a deadly form of muscular dystrophy.
— Caleb Hull (@CalebJHull) May 30, 2018
Young Jordan is also a good friend of Vice President Pence, as the Washington Post reported in March 2017.
“Where’s Jordan?” asked Vice President Pence as he walked into the White House meeting of terminally ill patients and their families. All eyes shifted, and Pence made a beeline for a 7-year-old boy from Indianapolis with a broad grin.
Back home, when Pence was Indiana’s governor, Jordan McLinn and his battle with Duchenne muscular dystrophy had helped inspire passage of a state “right-to-try” law intended to give the desperately ill access to medications not yet approved by the Food and Drug Administration. Fast-forward to Washington, where Pence is now in a position to encourage national right-to-try legislation.
“We’re going to get this done,” he assured Jordan’s mother, Laura McLinn, and the other families gathered last month.
And now Jordan gets to hug the president on this special day for him.
https://twitter.com/SteveKopack/status/1001869894122602499
This is beyond adorable ❤️
— Teresa (@AmericanHere) May 30, 2018
What a genuinely sweet and touching, and very human, moment for everyone. God bless you in your fight, Jordan.
This is important. I’ve had terminal cases in my family and it is the most draining and humbling experince. When the options are die either way or possibly cure/manage the condition what do people have to lose? These are willing participants that might help unlock a cure or treatment and for that I thank them.
Duchenne muscular dystrophy, Damn.
The problem is those drugs just don’t work. Check the clinical data.
But you can’t know if they work – if you don’t let people try them.
A sweet lovely moment for the day. Jordan is such a cutie!
“What a genuinely sweet and touching, and very human, moment for everyone.”… Very true, of course that means the leftist idiots go full rutabaga over it… I’m sure they’ll compare him to Joseph Mengele or something within 24 hrs…
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